Researchers expected counselors working with some populations to report barriers with SMA screening, but all counselors faced ...

In her debut column of "Caring Together," Connie Chandler reflects on her college days, when friends volunteered to help with ...

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry ...

Following the launch of MDAS' Cybernics Treatment program, columnist Sherry Toh shares her hopes and concerns for the future of SMA.

Liver damage related to Zolgensma gene therapy usually resolves within a few months of treatment, a study found.

Columnist Halsey Blocher honors Val Kilmer, the late movie legend who offered a positive representation of living with a tracheostomy tube.

For a boy with SMA in China, starting Evrysdi (risdiplam) just 12 days after birth was safe and helped him reach key motor ...

Motor improvements in SMA adults treated with Spinraza paralleled a boost in electrical impulses along nerves that supply ...

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the ...

Drawing on some previous volunteer experience, columnist Sherry Toh takes on a new role at SMA News Today: forum moderator.

Researchers studied 118 SMA type 2 patients and saw their RULM scores stayed higher than expected had their disease kept its ...