Caren and Dan Mahar can’t stop the sun from shining to save their 12-year-old daughter, but they’ve done everything short of it. Since finding Katie has xeroderma pigmentosum, a rare genetic disorder ...
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What is xeroderma pigmentosum? The rare genetic disorder that forces people to avoid sunlight
Affected populations: Xeroderma pigmentosum is a rare genetic disorder that makes people's skin extremely sensitive to the harmful effects of ultraviolet (UV) light. Both males and females can develop ...
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