In her debut column of "Caring Together," Connie Chandler reflects on her college days, when friends volunteered to help with ...

Researchers expected counselors working with some populations to report barriers with SMA screening, but all counselors faced ...

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry ...

Liver damage related to Zolgensma gene therapy usually resolves within a few months of treatment, a study found.

Following the launch of MDAS' Cybernics Treatment program, columnist Sherry Toh shares her hopes and concerns for the future of SMA.

Columnist Halsey Blocher honors Val Kilmer, the late movie legend who offered a positive representation of living with a tracheostomy tube.

For a boy with SMA in China, starting Evrysdi (risdiplam) just 12 days after birth was safe and helped him reach key motor ...

Motor improvements in SMA adults treated with Spinraza paralleled a boost in electrical impulses along nerves that supply ...

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.

Drawing on some previous volunteer experience, columnist Sherry Toh takes on a new role at SMA News Today: forum moderator.