For columnist Alyssa Silva, control has always been her safety net. But in reality, it doesn't protect her; it exhausts her.

Columnist Sherry Toh can't fathom generative AI replacing human empathy when it comes to caregiving for people with rare diseases.

A study found mutations that cause SMA may trigger problems with bone cell communication, suggesting a potential new way to treat weak bones.

Home healthcare requires adaptability, writes columnist Ari Anderson, who has relied on home health nurses for decades.

Most children SMA type 1 can survive an episode of pARDS, a life-threatening respiratory failure, under standard protocols, ...

When columnist Connie Chandler tackles an art project, it becomes a creative collaboration thanks to her supportive team of ...